MOE MOE MOE Dat komt door MS. Het is nu wel heel erg. Ik wankel, slaap driemaal per dag. Ik bedenk nu hoe ik zoveelmogelijk de moed erin kan houden, gegeven het feit dat MS (nog) geen geneesmiddel heeft. Maar ja, er is wat er is. En ik ga voor de tweede keer een rolstoel […]
For now, I switched from Dutch to English. The title is better in English and there are patients with MS all over the world. I try to find information about it everywhere. Most of the information is in English. Most of the people in my homeland speak and understand English.
A patient wrote on http://www.patientslikeme.com: ‘MS sucks’. I think he is right. But I also tried to find more positive information. That is difficult, I know. There was a time in which I was curing from depression. I am using medication against it . Now I know that it is one of the symptoms of MS. But a lot of people around me didn’t like the word ‘ depression’. Much too complicated and spooky. I also have problems with keeping my balance. It was easy to understand that someone depressive has problems with keeping her balance. Dizziness is a symptom of MS too. It shows me that only people who have MS know what it is, how it feels. And perhaps some doctors too.
You see that the title above contains ‘mindfulness’. I am a mindfulness teacher since about a year. At that time I did not know that I have MS. But I think that trying to be mindful helps me a lot in coping with this illness. Sometimes it’s hard. Mindfulness says: ‘it is like it is.’ I hate it! Often I do. But I think that’s the way it is. Mindfulness, attention for what’s happening here and now, helps me. It can also help people around me. I am convinced of that. My mother always tells me: ‘Don’t think of bad things. Don’t talk too much about them.’ Mindfulness told me to cope with the bad things in life the same as with the good things. It is hard to do that, I know. But when you feel like me and like a lot of MS patients like me it is the only way to get on. Having MS and cope with it mindfully helps me to be with it. It looks like I have MS since more than a decade (I am 42 years old) but officially I am aware of it since a month. Chubs I had earlier were not recognised as such.
Someone I spoke to said it may be easier to know it so much later. I don’t know. Perhaps, when it was discovered earlier it could have been delayed earlier. Perhaps I wouldn’t be as far as I am now? I don’t know. Do you? I go on mindful and wish all of my readers to be mindfull too! Mindfulness training is used to help MS patients to go on with their illness as good as possible. Because I am a mindfulness trainer and I have MS, I decided to share my knowledge and experience in this blog.
I promise you to find out more of the scientific results that proove the positive results of mindfulness to MS a next time