Volgens ACT moet ik dagelijks een foto maken. Dat doe ik ook, maar ik gebruik ook foto’s van anderen. Kijk maar: Dit is mijn dagboek. Ik kan niet goed meer schrijven en moeilijk foto’s maken, dus zo werkt het voor mij. Dit zijn plekken waar ik dit weekend ben geweest, op de fiets met B. […]
My body hurts, I am terribly dizzy, I can’t do ‘normal’ things anymore. I talk slowly. I move insecure. I am not (anymore) but I understand why MS patients feel depressed. I am impatient about the fact I cannot be anymore who I want to be.
People around me
People who live near me, who have to cope with me having ms handle it all different. They try to give me (and themselves) the courage that it could be better – once, that there will be new medication that will cure MS. Or the ones who think that it depends on the patient and his or her behaviour how bad his or her illness is. And there is one group I can think of and that are the people who want you to remain silent. ‘Imagine other people think the worst things of you!’
Mindfulness ans patience
Mindfulness tells me to be patient. To be patient with myself and with others. It is what it is. And yes, that’s so right. But it is also só frustrating. I am happy that mindfulness also teaches me that not only good but also bad things happen. They should not be ignored. Otherwise you meet them in other circumstances. They always stay with you. MS is there, always.