MOE MOE MOE Dat komt door MS. Het is nu wel heel erg. Ik wankel, slaap driemaal per dag. Ik bedenk nu hoe ik zoveelmogelijk de moed erin kan houden, gegeven het feit dat MS (nog) geen geneesmiddel heeft. Maar ja, er is wat er is. En ik ga voor de tweede keer een rolstoel […]
My body hurts, I am terribly dizzy, I can’t do ‘normal’ things anymore. I talk slowly. I move insecure. I am not (anymore) but I understand why MS patients feel depressed. I am impatient about the fact I cannot be anymore who I want to be.
People around me
People who live near me, who have to cope with me having ms handle it all different. They try to give me (and themselves) the courage that it could be better – once, that there will be new medication that will cure MS. Or the ones who think that it depends on the patient and his or her behaviour how bad his or her illness is. And there is one group I can think of and that are the people who want you to remain silent. ‘Imagine other people think the worst things of you!’
Mindfulness ans patience
Mindfulness tells me to be patient. To be patient with myself and with others. It is what it is. And yes, that’s so right. But it is also só frustrating. I am happy that mindfulness also teaches me that not only good but also bad things happen. They should not be ignored. Otherwise you meet them in other circumstances. They always stay with you. MS is there, always.